Genetic Support Groups

International Birth Defects Information Systems

International Clearinghouse for Birth Defects Monitoring Systems

Birth Defects Information Directory

EURORDIS - European Organisation for Rare Diseases

Australian

Association of Genetic Support Australia

Genetic Health Services Victoria

Canada

Canadian Directory of Genetic Support Groups

Canadian Organisation for Rare Diseases

Genetic disorders, Birth defects, Genetic information and Patient Services GAPS

Demark

Center for SMA Handicapgruppe

France

La Chainette (Network Chain)
website in French, English, Spanish, Italian and Japanese

Spain

FEDER - Federacion Espanola de enfermedades Raras

New Zealand

New Zealand Organisation of Rare disorders (NZORD)

UK

Genetic Interest Group Working to the Benefit of All people Affected by Genetic Disorders

Contact a Family For Families with Disabled Children

USA

National Organization for Rare Diseases

Genetic Alliance

Chromosome Deletion Outreach

Rare Genetic Diseases in Children - An Internet Resource Gateway

Disease Database

Mountain States Genetic Network

Mums National Parent-to-Parent Network

Parents let unite for Kids
parents of children with disabilities and chronic illnesses in the state of Montana

Have a website you would like to add?

Submit your URL to Hannah@aniridia-network.net